Director, Advocacy & Alliance Development

About Genetix Biotherapeutics

At Genetix Biotherapeutics every role has meaning, every team member is respected, and every day is a chance to make a difference. When you join Genetix, you're not just landing a new role, you become part of a company that's pursuing curative gene therapies to give patients and their families more days. We are doers, thinkers and collaborators who embrace and live by our values:

Our innovation is rooted in the diversity of our teams and results are achieved through cooperation and the integration of multiple viewpoints. This is personal and we approach every challenge with radical care.

SUMMARY

Genetix Biotherapeutics Market Access, Advocacy & Policy team (MAAP) is focused on helping patients access our therapies to deliver on our mission to transform lives through curative therapies for patients with rare, genetic diseases.  This committed and focused group is looking for our newest team member to execute our advocacy and alliance development efforts through flawless execution and successful engagement with government affairs stakeholders, alliances and trade associations as well as patient advocacy groups.  Come work with a dedicated, expert group of employees and contribute to a purpose-driven organization that is shaping the future of gene therapy.

This position is based in Washington, D.C. or hybrid (3 days a week) in our Somerville – Assembly Row, Massachusetts office. 

RESPONSIBILITIES

Advocacy & Alliance Leadership

• Develop and execute an enterprise-wide advocacy and alliances strategy that strengthens bluebird’s leadership in gene therapy and rare diseases.
• Lead engagement with multi-stakeholder alliances, trade associations, and patient advocacy groups at the national, regional, and local levels.
• Build alliances that support commercialization goals, including driving awareness, reducing barriers to access, and shaping policy.
• Position bluebird bio as a leading and trusted voice in the external environment on patient access, reimbursement, and innovation in gene therapy.

Government Relations & Policy Strategy

• Identify, prioritize, and advance legislative and policy initiatives that impact commercial gene therapy access and reimbursement.
• Serve as a primary company representative with policymakers, government agencies, and legislative stakeholders.
• Develop company positions, briefing materials, and testimony on key policy issues in collaboration with MAAP, Regulatory, Medical Affairs, Legal/Compliance, and Commercial leadership.
• Proactively monitor and analyze policy developments at the federal and state levels, providing strategic recommendations to leadership.

Cross-Functional Partnership

• Partner with Commercial, Market Access, Patient Services, Regulatory and Medical Affairs to ensure advocacy and policy efforts support business objectives and product strategies.
• Bring the voice of the patient and advocacy community into corporate decision-making, ensuring insights are translated into action.
• Support the governance of grants, sponsorships, and corporate memberships tied to advocacy and alliance development.

Leadership & Governance

• Establish governance and reporting frameworks to track advocacy and alliance activities, budgets, and impact metrics.
• Ensure all external engagements adhere to compliance, legal, and regulatory standards.
• Represent MAAP and bluebird leadership in cross-functional forums and external settings.

QUALIFICATIONS

• Have a bachelor’s degree and a minimum of five years’ relevant experience in patient advocacy, market access, public affairs and/or patient engagement, preferably within the biotech, pharmaceutical or healthcare industry.  Advanced degree in science, public affairs, communications, or other relevant field and rare disease experience a plus.
• Based in DC and registered lobbyist is a plus.
• An established understanding of the relevant advocacy, policy and legislative landscape, industry rules and regulations.
• Highly skilled at building relationships – from internal stakeholders to external community leaders and an established track record as a champion for patients and families.
• Ability to work effectively in a collaborative team environment
• Experience working in a commercial-stage biotech or pharmaceutical organization; understanding of relevant policy, commercial and scientific matters related to gene therapy and rare disease a plus.
• Self-starter with an ability to embrace change and multi-task in an extremely fast-paced environment, constantly adjusting and accounting for the external environment.
• Demonstrated ability to independently drive projects to completion and an outcomes-oriented mindset; personal commitment to high performance and continuous improvement.
• Role could include travel up to 50% of the time.

Additional Information:

Base Salary Range: $214,000 - $273,000

The range provided is based on what we believe is a reasonable estimate for the base salary pay range for this job at the time of posting. We may ultimately pay more or less than the posted range, and the range may be modified in the future. This role is eligible for an annual bonus and long-term incentive. Actual base salary pay will be based on several factors, including but not limited to experience, skills, relevant education/qualifications, external market, internal equity, and other job-related factors permitted by law.

Genetix’s total rewards package also provides employees with a comprehensive and competitive benefits suite to support a variety of employee needs. These benefits include comprehensive health, life and disability insurance, employer-matched 401(k) plan, lifestyle spending account, flexible time-off + paid holidays and winter shutdown, tuition reimbursement & loan repayment assistance, paid parental leave, generous commuter subsidy, and much more.

Genetix is proud to be an equal opportunity employer, seeking to create a welcoming and diverse environment.  All applicants will receive consideration for employment without regard to race, color, religion, gender, gender identity or expression, sexual orientation, national origin, genetics, disability, age, veteran status or any other applicable legally protected characteristics.