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Executive Director, Scientific Information Integration (remote)

United States - Remote
Why Join Us?
 
Be a hero for our rare disease patients
 
At Ultragenyx, we fundamentally believe that taking real impactful action to care for the needs of patients and our people is always the right thing to do. To achieve this goal, our vision is to lead the future of rare disease medicine. For us, this means going where other biopharma companies won’t go – challenging the status quo and creating a new model that advances our field so more patients and caregivers can benefit from life-changing treatments. We do this by following the science, applying a novel rapid development approach, making innovative medicines at fair and reasonable prices, and creating a collaborative ecosystem to reach patients in ways that are most meaningful for them. 
 
Our commitment and care for patients extends to our people, so culture is an essential cornerstone for Ultragenyx. We remain continuously focused on creating a supportive and inclusive environment of profound learning and growth – so employees can thrive in all areas of their lives, in and outside of work. Ultimately, we want to be an organization where we would be proud for our family, friends and children to work.
 
If you want to have a meaningful impact, do the best work of your career, and grow a lot, both professionally and personally, come join our team.

Position Summary:

ultrafocused – Work together to fearlessly uncover new possibilities

The Executive Director, Scientific Information Integration provides strategic leadership across the scientific information and publications organization (SIP), serving individual programs as the central integrator between clinical regulatory writing, clinical trial transparency, library sciences, and scientific publications. This role is accountable for ensuring a seamless, compliant, and strategically aligned flow of scientific data and information from early clinical development through post‑approval and lifecycle management. 

In addition, this position assesses and enables modern, technology-informed scientific communication practices including AI within SIP playing a critical role in maximizing cross-functional alignment to ensure efficiency and data driven excellence. 

Work Model: 

Remote: Officially documented as working full-time from home, with travel to Ultragenyx's offices or other locations on occasion as needed.

Responsibilities:

Provide leadership for the integration of scientific information activities, establishing cohesive program strategies that align the following with core program teams:  

  • Clinical regulatory documents 
  • Clinical trial disclosure and transparency activities 
  • Scientific publications and congress dissemination 
  • Library sciences search and delivery 

Ensure continuity and consistency of scientific data interpretation and messaging across development and commercialization stages 

  • Oversee the development and execution of integrated, lifecycle‑based publication strategies aligned with Regulatory milestones and Medical Affairs objectives 
  • Ensure publications are strategically sequenced to support launch readiness, scientific leadership, and long‑term evidence generation 
  • Partner with authors, investigators, and internal stakeholders to uphold the highest standards of scientific integrity, transparency, and compliance 
  • Provide strategic oversight for clinical trial disclosure and data sharing activities, ensuring alignment with global regulations and evolving transparency expectations including strategic release of trial registrations and results disclosures with publications, external data requests, and corporate objectives 
  • Elevate data transparency from a compliance requirement to a strategic enabler of scientific trust and credibility 

Serve as a strategic peer partner to Medical Affairs leadership, collaborating on:  

  • Evidence planning and scientific platform development 
  • Consistent interpretation and use of clinical data  
  • Optimization of publication content and planning to support medical and commercialization planning  
  • Improved timeliness and strategic impact of scientific publications and disclosures 

Enable teams with proactive, integrated, high‑quality scientific information  

Lead the identification, evaluation, and implementation of AI-enabled and digital tools to modernize scientific information and publications workflows  

Drive efficiencies and insights across literature surveillance, publication planning, data access processes, and scientific content development 

Influence and collaborate with senior leaders across key stakeholders including:  

  • Clinical Development (e.g. Clinical trials, Disease Monitoring Programs, ISTs) 
  • Medical Affairs (e.g. Scientific Communications, Medical Information, Medical Communications, HEOR, MSLs, Patient Diagnosis Program) 
  • Regulatory Affairs (e.g. Clinical Regulatory Strategy, CMC Regulatory) 
  • Commercial (e.g. Market Access & Payer Marketing, UltraCare Liaisons) 
  • Others as needed (e.g. Investor Relations, Corporate Communications, Market Access & Payer Marketing, etc.) 

Requirements:

  • Advanced degree preferred (PhD, PharmD, MD, or equivalent discipline) 
  • 12+ years of experience in scientific publications, clinical trial transparency, regulatory writing, or related evidence‑focused roles 
  • Must have exceptional collaboration skills to coordinate, align, and prioritize needs across multiple functions within the SIP group and across other departmental groups 
  • Outstanding leadership skills to partner with multiple stakeholders and program team members to influence without authority 
  • Experience to meet the global needs for information integration to meet the specific needs for each region, while maximizing efficiencies across regions 
  • Must have strong written and verbal communications skills 
  • Experience in leveraging AI tools and other process improvement and continuous improvement efficiency skills 
  • Demonstrated experience leading cross‑functional initiatives spanning development and post‑approval activities 
  • Strong understanding of global scientific publication standards and clinical trial transparency requirements 
  • Prior people leadership and matrixed leadership experience preferred 
  • Strategic lifecycle thinking and systems integration 
  • Executive-level stakeholder engagement and influence 
  • Comfort operating at the intersection of science, compliance, and innovation 
  • Change leadership and technology‑forward mindset 

#LI-CS1 #LI-Remote

The typical annual salary range for this full-time position is listed below. This range reflects the characteristics of the job, such as required skills and qualifications and is based on the office location noted in this job posting. The range may also be adjusted based on applicant's geographic location.


This position is eligible for annual bonus and equity incentives. Actual individual pay is determined by demonstrated experience and internal equity alignment.

Pay Range

$274,500 - $339,000 USD

 
Full Time employees across the globe enjoy a range of benefits, including, but not limited to:
 
·         Generous vacation time and public holidays observed by the company
·         Volunteer days
·         Long term incentive and Employee stock purchase plans or equivalent offerings
·         Employee wellbeing benefits
·         Fitness reimbursement
·         Tuition sponsoring
·         Professional development plans
 
* Benefits vary by region and country

Ultragenyx Pharmaceutical is an equal opportunity employer and prohibits unlawful discrimination based on race, color, religion, gender, sexual orientation, gender identity/expression, national origin/ancestry, age, disability, marital and veteran status, and any other status or classification protected by applicable federal, state, and/or local laws. Reasonable accommodation will be provided for all protected statuses or classifications protected by applicable law, including individuals with disabilities, disabled veterans, for pregnancy, childbirth, and related medical conditions, and based on sincerely held religious beliefs. Applicants can request an accommodation prior to accepting a job offer. If you require reasonable accommodation in completing this application, or in any part of the recruitment process, you may contact Talent Acquisition by emailing us at talentacquisition@ultragenyx.com.

See our Privacy Policy.

It is unlawful in Massachusetts to require or administer a lie detector test as a condition of employment or continued employment. An employer who violates this law shall be subject to criminal penalties and civil liability.

Note to External Recruiters: All candidate activity and open positions are managed strictly through our Human Resources Department. Our Human Resources Department kindly requests that recruiters not contact employees/hiring managers directly in an attempt to solicit business and present candidates. Please note that failure to comply with this request will be a factor in determining a professional relationship with our organization. Submission of unsolicited resumes prior to an agreement set in place between the Human Resources Department and the recruiting agency will not create any implied obligation.  Inquiries on developing a recruiting relationship with us, may be directed to: talentacquisition@ultragenyx.com.

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We are dedicated to fostering an inclusive workplace environment that keeps our teams inspired, empowered, and free to share new ideas—and to better finding solutions that advance the treatment of those living with rare diseases.  We invite you to voluntarily provide demographic information in a confidential survey at the end of this application to assist us in complying with legal requirements and managing our organization. Providing this information is completely optional and it will not be accessible or used by those involved in your hiring or decision-making process. Your response – or decision not to respond, has no impact on your opportunity for employment. Responses to the voluntary self-identification requests will be confidential and securely maintained and only reported in the aggregate in support of the efforts outlined above.

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